Leigh
Registered User
Posts: 1
(7/27/04 7:04 am)
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MEN2B
Hi. I too was diagnosed with MEN2B when I was about 13 and immediately had a total thyroidectomy. My pararthyroids were then planted back into my neck and, hold thumbs, since then everything has been clear. A year later I had both my adrenal glands removed. I am now 26 and just try to work my way through all the problems that seem to come along with having men2B. My biggest thing that has always bothered me is not been able to put on weight. Anyone else out there have this problem?? Also unlucky enough to suffer with endometriosis which I try to keep under control.
If there is anyone out there with Men 2B who just wants to chat or if anyone has any info on it, as it is pretty difficult to come by, please let me know on leighthorne1@hotmail.com
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